Saturday, August 16, 2014

Still No Evidence of Disease

I realized that I posted on Facebook, but forgot to actually post it on here.  Everything is still good, and NED is sticking around for awhile.  Woohoo!

Monday, August 4, 2014

PET Scan Tomorrow

My blood-work that was taken a week or so ago came back good with the liver enzymes decreasing so that one was even in the normal range, and the tumor markers were still in the normal range.  One of the tumor markers did jump up 10 points, but it was still in that normal range.  Since it has been 7 months since the last PET scan, we decided to go ahead and do another one.  The jump in the tumor marker makes me a bit nervous; so, this will us know for sure what is going on.   Please keep me in your prayers that the scan will continue to show No Evidence of Disease!

Wednesday, July 9, 2014

Coming up on 2 years….

 I am a week away from my 2 year Cancerversary, and I have a weird range of emotions going on.  At this time, I'm still NED which I am so thankful for, but I'm still a bit melancholy or apprehensive about coming up on that date.  My next labs are near the end of July which probably adds a little to that as well.  At least, I'll be having some good family time the weekend before and during the week of it; so hopefully, that will make it go by a little easier.

  One of the things recently that may be weird to some but made me very happy is that it took until the end of May to reach my deductible/out-of-pocket for this year.  That is huge as I met 2 years worth of very high deductible  and out-of -pocket within 8 months between July 2012 -February 2013.  While I know people have various opinions on things with healthcare right now, it has been a huge help to me to be able to change to a gold plan where I pay more each month than before but then have a much, much lowered in-network deductible/out-of-pocket since I have to purchase my own individual coverage.  I feel like I have at least done what I can to lower my insurance and medical costs to what I can manage, as long as I stay in-network. That is a huge relief for me!

There have been a lot of doctor visits and things of that nature in the last 2 years, but it is also crazy how much "living" I've managed to cram into that short amount of time.  I just finished creating some photo albums from 2013. (Yes, I was very behind) Normally, I have an album that is 65-85 pages for the year, but for last year, I have 3 albums that are all about that size.  I finished the album for the trip to Australia and New Zealand that I took with my parents, and I was trying to find what could be cut as I hit the maximum of 100 pages.   That was truly a trip of a lifetime, and I am so thankful that I got to go on it.  I shared some pics on Facebook, but here are a few as well.  If Australia and New Zealand are not already on your "bucket" or "living" list, I highly recommend that you add them :)



















Sunday, May 4, 2014

Quick update

I just wanted to give a quick update on my most recent blood tests.  Thankfully, the ALP test, which was the new one that had been high last check, had come back down into the normal range, and the ALT also saw some decrease.  Thankfully, that eliminates it being cancer related!  We still aren't exactly sure the reason for the rise, but I am being able to start back some of the supplements while trying to watch carbs and some other things that could impact the liver food wise.  Hopefully, the numbers will get better, but I will be following up with my primary care doctor soon as well to check on cholesterol, etc.

Thursday, April 17, 2014

Good news/ not-so-good news

The Good News first -- My tumor markers have stayed the same and are still in the normal range.

The Not-So-Good News --
part 1)  I have to have a biopsy next week on Tuesday for a rash that has continued to appear/disappear ever since chemo.  My oncologist does not think it is cancerous, but she is worried that it keeps coming back.  Hopefully, this will

part 2) My liver enzymes had a fairly big increase in this set of bloodwork with one that had been normal becoming high this time.  My liver enzymes were barely increased when my liver was full of cancer, but they have been steadily rising in the past year which seems a bit backward.  It does make us quite a bit nervous as to what is causing it.  I'm going off of any supplements and pain-killers along with reducing my only new med in the last 3 months until we repeat the bloodwork in a week & 1/2.  Just hoping that it will decrease from that, and that we won't have to take a next step.  There always is the possibility that something is brewing in the liver and my tumor markers just aren't being reliable, but with the good scan in December when the enzymes were already going up, that doesn't seem to be very likely.

So anyway, it is a bit hard to be too excited about my markers when there are several other unanswered questions.  Thank you for the prayers for good tumor markers, and please pray that we will both get answers & get them quickly on these two other concerns.   Have a good weekend!


Monday, April 14, 2014

Marker time again

Marker time again…..I can't believe it's marker time again…. praying those markers stay in the normal range for me…..oh,oh,  it's marker time again (sing to tune of "On the Road again" by Willie Nelson)

I really can't believe that it has been 3 months.  I must be getting used to this more & more because a week and a half ago I had no idea when this appointment was instead of being able to tell the day, hour, & minute of the next appointment from the last moment of the previous one.  The appointment is tomorrow, Tuesday, and I should have some answers within 48-72 hours.  Of course this past crazy weekend helped to keep my mind off of it as well.

For the bad first, I got the wonderful news this past weekend that there has been another incident courtesy of the  identity thieves that I've dealt with for the past 7 years.  If you've ever dealt with identify theft, it is the "gift" that just keeps on giving.  At least, I had the police report and documentation to show that this was probably the same people, and hopefully that combined with the police report being filed will be enough to take care of it.  So, dealing with that kept me pretty occupied in an "oh, so fun" way.

Thankfully, there was good as well in getting to cross some items off on my living list this weekend.  I've lived in Florida for 38 years, but had never stepped foot on the northern gulf beaches.  So, this past weekend I got to enjoy some time on Fort Walton beach along with seeing my wonderful friend, Liz.  I just wish we'd managed to get a picture sometime over the weekend, but many memories were made which works just as well :)

Hopefully, you all had wonderful weekends, and I appreciate your prayers for a good report!

Monday, March 17, 2014

March of trips

Life has been very busy this spring term because I've been teaching 11 classes (2 on-campus & 9 online).  Two courses will end this weekend, and I'll get a little break until one starts up again the 2nd week of April.  I am thankful that I am able to work this much, and it is helping to finance some more trips which are coming fast & furious during March.

At the end of February/ beginning of March, I was able to travel with my parents to  Nashville for my niece, Lylah's 1st birthday party.  It was great to be there for that party along with seeing David, Jenn, and the rest of the family in the area.  Who wouldn't have a wonderful time with this precious girl even when she has crazy peach juice hair?


The spring break for FC and Hillsborough County lined up again; so, I was able to knock another few places off my list with a family cruise.  We went to Honduras, Belize, Costa Maya, and Mexico, and I enjoyed getting to snorkel on the 2nd largest barrier reef in two different locations.  I also had the chance to see 2 different sets of Mayan Ruins which was especially interesting because it ties into one of the Humanities courses that I teach.
 Here are some pics from the ground of the Altun Ha ruins

Here is a pic of the view from the top, and Dad & I after climbing up the above temple.  
It was a hike, but I'm so glad that I did it!

Add in some cuddle time with baby Drew and beautiful beaches like the one below, and 
how could it not be an amazing vacation?!?!?!!


My March of barely being home will continue later with a convention in Chicago that has the added bonus of getting to see my college roommate Jill along with maybe finally getting to do some touristy things there.  That will be followed by a trip to San Antonio & Austin to see another friend and go to a concert by one of my "living list" musicians to see.   At least at the end of this month, I will have crossed off 5 more places/things to do from my list.  Again, I am so blessed that my work is primarily online which allows me to get to have these wonderful experiences.  I hope everyone else is having a wonderful March!